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04.09.2024

Two fathers – from engagement for their children with rare diseases towards strong advocacy

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07.08.2024

Two parents: early life-limiting diagnosis and loss vs. late diagnosis after longstanding failures

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24.07.2024

Rare disorder: mother and her daughter with hidden abilities

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10.07.2024

A mother with a girl having a rare disorder – from childhood to adulthood

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19.06.2024

Time for another look at people with disabilities across life span

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12.06.2024

Specific needs of children having disabilities with low and high motor function – two mothers report

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29.05.2024

Two parents of children with severe disabilities and their individual stories and wishes

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22.05.2024

Two parents with amazing and emotional stories and life span issues of their children

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15.05.2024

Less barriers and more appreciation – “that we are all in for each other“

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24.04.2024

Early diagnosis of a rare genetic disorder and challenges with health providers and education

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